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News Report Page 4 of 18
Publication Date:-
2026-02-16
   
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North West patients and families call on NHS to recognise Congenital Heart Disease (CHD) as a lifelong condition

AS part of:- 'Congenital Heart Disease (CHD) Awareness Week,' a dedicated group of:- volunteers representing patients and families across the North West is have been calling on NHS leaders to officially recognise CHD as a lifelong condition; alongside the likes of epilepsy, asthma and type 1 diabetes.
 
Every 2 hours a baby is born in the UK with a serious heart condition, making it the most common birth condition in the UK. Although surgical repairs can help many congenital heart patients live long and largely healthy lives, the underlying condition cannot be:- 'cured' and most patients need ongoing support and medical follow up over many years and decades.
 
The Patient Public Voice (PPV) group for the North West, North Wales and the Isle of Man is made up entirely of individuals and families with 1st-hand experience of living with CHD, working alongside a recently formed Learning Disability Forum for CHD patients with additional needs. Now these volunteers are calling on NHS leaders to formally recognise Congenital Heart Disease as a lifelong (long term) condition.
 
The move would help doctors, nurses and other medical professionals to streamline access to primary care and a range of specialised support, especially in emergencies. It would also give the NHS commissioners planning and developing services more accurate, in depth data about the number of CHD patients nationally, the support they are accessing and additional health conditions and illnesses which may affect their care.
 
Janet Rathburn, Chairperson of the PPV group in the North West, North Wales and the Isle of Man, said:- "Whether your child, grandchild or other close family member is diagnosed with Congenital Heart Disease, or you are living with CHD yourself, it can feel like your world has been turned upside down. We aren't clinical staff, but we are families and patients who have walked this path and are determined that everyone with CHD gets the support they deserve from prenatal care through childhood and early adulthood into their later years. An important part of our volunteering activity centres on lobbying NHS leaders to help influence the decisions they make from the perspective of patients. That's why we're calling on the NHS to officially recognise CHD as a lifelong condition and make an important step towards more widespread understanding and tailored support to help people live as full a life as possible".

The Patient and Public Voice Partner (PPV) group for the North West, North Wales and the Isle of Man represents patients who receive/have received specialist congenital heart care across the North West, North Wales and the Isle of Man. The group has recently created this video featuring real-life stories of people born with heart conditions and their families, which is being used in health and education settings Regionally.
 
The PPV is an extension of the Region's Congenital Heart Network, which has just launched a new-look website to coincide with Congenital Heart Disease (CHD) Awareness Week 2026, offering practical information for families from prenatal diagnosis through to adult care:- NorthWestCHDNetwork.NHS.UK.

If interested in having a say about:- The Patient and Public Voice Partner (PPV) they are keen to hear from families and patients throughout about:- Lancashire, South Cumbria, Cheshire, Merseyside, Greater Manchester, North Wales and the Isle of Man. To find out more about getting involved with the PPV group, contact:- NorthWestCHDNetwork@AlderHey.NHS.UK.

The PPV group's next Patient Information Day will take place at the Institute in the Park, Alder Hey Children's Hospital, Liverpool, on:- Saturday, 7 March 2026. This event is a chance for both patients and families to hear from leading experts in both paediatrics and adult congenital heart care and, most importantly, from patients who are thriving while living with CHD. Register at:- NorthWestCHDNetwork.NHS.UK.


Doors opened for School leavers to become train drivers

SCHOOL leavers will soon be able to become train drivers, as the Government is set to lower the legal age to be a train driver from:- 20 to 18 years old, from:- 30 June 2026. 

The move will open doors for younger people to enter a highly skilled profession at a pivotal time for the industry, when by 2030, a quarter of all train drivers are expected to reach retirement age. This figure rises to 32% in Scotland and the North East, and 38% in Wales. 

With half of train operators now back in public ownership, this new generation of train drivers will help unlock the railway's full potential for passengers and businesses, including:- freight, that use the network. This is a key step ahead of the creation of Great British Railways. 

The 10 February 2026 marked the next step in changing the law so that from:- 30 June 2026, 18 year olds can apply for train driver roles. Legislation will be laid in Parliament during National Apprenticeship Week, reaffirming the Government's plan to get young people into rewarding industries while tackling youth unemployment and driving economic growth. 

Rail Minister, Lord Peter Hendy said:- "Lowering the minimum age for train drivers is a significant step forward for young people across Britain. This change will open doors for those wanting to move straight into the workplace, giving a younger generation the chance to build rewarding careers in the railway, whether that's in freight or passenger services.  It's a move that will help secure the future of Great British Railways and the wider rail industry, and ensure the workforce reflects the energy, talent and ambition of the next generation."  

There is a lack of diversity within the rail industry with fewer than 4% of train drivers are under 30, and only 11% are women. Less than 13% train drivers are from a minority ethnic background.  

The change in law will create opportunities for young people across Great Britain from different backgrounds, to bring the UK in line with other countries across the world such as:- Switzerland, Germany and Australia. It will also level the playing field across the transport sector, where you can be a pilot or drive a tube and tram on the London Underground from 18. 

The legislation will help the rail sector to secure the next generation of drivers, passing on skills from current staff to keep passengers safe on the network and grow the freight industry. 

Work and Pensions Secretary Pat McFadden said:- "With almost a million young people not in education, employment or training, we need to open up new routes into skilled, well paid careers. Lowering the minimum age for train drivers puts young people at the controls; of a train today, and of their own futures tomorrow. Apprenticeships like these benefit everyone. Young people gain skills and a foot on the career ladder, while employers gain the fresh talent they need to grow. It's a great example of what's possible when Government, unions, and industry work together." 

Daniel Mann, Director of Industry Operations at Rail Delivery Group, said:- "The rail industry plays a vital role in connecting communities and supporting the economy, and as the workforce evolves, we need to attract a broader range of skills, experiences, and perspectives. Lowering the minimum age for train drivers will help to open up a career in the railway for young people and will enable the industry to build the workforce of the future, support long term resilience, and make sure the railway can continue to deliver for passengers." 

Cabinet Secretary for Transport and North Wales Ken Skates said:-  “This is great news, and will open up opportunities for young people.  It opens the door to a rewarding career earlier, giving young people an opportunity to be part of the exciting developments in our railways."
 
Dave Calfe, general secretary of ASLEF, the train drivers' union said:- "ASLEF has been campaigning for many years to lower the age at which drivers can start training. This decision, to allow people to leave education and become a driver at 18, will increase diversity in the driver's cab by encouraging more young people from all communities to drive trains on Britain's railways. Because, at the moment, many young people make their career choice at 18 and the industry misses out as the current minimum age is 20. This change will widen the opportunity for the rail industry to recruit the large numbers of train drivers required over the next 5 years."

What are your thoughts on this news topic? Email our Newsroom at:- News24@SouthportReporter.Com or send us a message on:- Mastodon, Facebook, or Twitter. Please do let us know as we love to hear your views....

 
      
 
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