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Weekly Edition - Published  02 May 2016


Local News Report - Mobile Page


Liverpool patient's plea: don't ignore M.E.

"I have lost friends because they expect me to feel as well as I've made myself look on the outside, and don't bother to understand when I'm not able to do this."  That's the experience of Janet Crawford, 55, of Liverpool, who has M.E., a disabling, neurological condition that can affect anyone at any time.  Many people with M.E. face isolation and loneliness as friends, family and professionals struggle to accept the true impact of the illness. By sharing her story for M.E. Awareness Month in May, Janet is sending a simple message: don't ignore M.E. "I'm socially isolated as my husband works full time, my children have their own family and work commitments, and none of my so-called friends have remained in contact." explains Janet.  People with M.E. experience severe, persistent fatigue associated with what's called post exertional malaise (the body's inability to recover after expending even small amounts of energy; sometimes also called:- 'payback') and chronic pain. Any physical or mental activity can trigger a flare up in symptoms. "I 1st became ill following an operation and several life stressors in 1999; I was diagnosed in 2002.  My symptoms were at their worst in August last year when I was signed off work. I had severe pain from any activity, was mentally and physically fatigued, and had very poor cognition and disturbed, un-refreshing sleep." said Janet. There is currently no specific test that can detect M.E. and, like Janet, many people wait a long time to be diagnosed. Around a quarter of people with M.E. are so severely affected that they remain bed or housebound. "I am currently housebound, living a very sedentary life to avoid any unpleasant symptoms and becoming bedridden again; like I am if I do any physical activity of daily living, like social family events, shopping or light housework."  Janet added. UK charity Action for M.E. is taking action to end the ignorance, injustice and neglect experienced by people with M.E. Find out how you can make a difference to the lives of people with M.E. right now at:- ActionForme.Org.UK or call:- 0117 927 9551.


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